1 Person—main language other than English spoken at home, code (ASCL 2011) NN{NN} Mandatory 1 2 Person with cancer—setting of death, code N[N] Conditional obligation:
Recorded for persons who have died.Conditional 1 3 Person—first degree relative cancer history indicator, yes/no/not applicable/unknown/not stated/inadequately described code N Mandatory 9 4 Person—second degree relative cancer history indicator, yes/no/not applicable/unknown/not stated/inadequately described code N Mandatory 19 5 Person with cancer—family history of hereditary genetic events indicator, yes/no/unknown/not stated/inadequately described code N Mandatory 9 6 Person with cancer—hereditary genetic events type, code N[N] Conditional obligation:
Complete if Person with cancer—family history of hereditary genetic events indicator, yes/no/unknown/not stated/inadequately described code N equals 'yes'.Conditional 9 7 Person with cancer—hereditary genetic events type, text X[X(39)] Conditional obligation:
Complete if Person with cancer—family history of hereditary genetic events indicator, yes/no/unknown/not stated/inadequately described, code N equals 'yes' and Person with cancer—hereditary genetic events type, code N[N] equals 'other'.Conditional 9 8 Person with cancer—personal genetic syndrome indicator, yes/no/unknown/not stated/inadequately described code N Optional 1 9 Person with cancer—personal genetic syndrome type, genetic event type code N[N] Conditional obligation:
Complete if Person with cancer—personal genetic syndrome indicator, yes/no/unknown/not stated/inadequately described, code N equals 'yes'.Conditional 9 10 Person with cancer—personal genetic syndrome type, text X[X(39)] Conditional obligation:
Complete if Person with cancer—personal genetic syndrome indicator, yes/no/unknown/not stated/inadequately described code N equals 'yes' and Person with cancer—personal genetic syndrome type, code N[N] equals 'other genetic events or syndromes'.Conditional 9 11 Person with cancer—date of cancer symptom onset, DDMMYYYY Mandatory 1 12 Person with cancer—date of initial primary health care consultation, DDMMYYYY Mandatory 1 13 Person with cancer—date of initial medical specialist consultation, DDMMYYYY Mandatory 1 14 Person with cancer—adolescent and young adult cancer healthcare provider type, code N[N] Mandatory 1 15 Person with cancer—shared care arrangement indicator, yes/no/unknown code N Mandatory 1 16 Cancer treatment—treatment funding source, code N DSS specific information:
Record this data element for the initial course of treatment for cancer.Mandatory 1 17 Cancer treatment—multidisciplinary team review indicator, yes/no/unknown code N Mandatory 1 18 Cancer treatment—specialist support services indicator, yes/no/unknown code N Mandatory 1 19 Cancer treatment—specialist support services type, code N[N] Conditional obligation:
Complete if Cancer treatment— specialist support services indicator, yes/no/unknown code N equals 'yes'.Conditional 19 20 Cancer treatment—specialist support services type, text X[X(99)] Conditional obligation:
Complete if Cancer treatment— specialist support services indicator, yes/no/unknown code N equals 'yes' and Cancer treatment— specialist support services type, code N[N] equals 'other'.Conditional 19 21 Person with cancer—care coordinator assignment indicator, yes/no/pending code N Mandatory 1 22 Cancer treatment—variation from planned treatment indicator, yes/no/unknown code N Conditional obligation:
This is to be collected for the intial course of treatment.DSS specific information:
Record this data element for the initial course of treatment for cancer.Conditional 1 23 Cancer treatment—treatment plan modification, text X[X(149)] Conditional obligation:
Complete if Cancer treatment—variation from planned treatment indicator, yes/no/unknown code N equals 'yes'.Conditional 9 24 Person with cancer—fertility counselling offered indicator, yes/no/unknown code N Mandatory 1 25 Person with cancer—fertility counselling provided indicator, yes/no/unknown code N Conditional obligation:
Complete if Person with cancer—fertility counselling offered indicator, yes/no/unknown code N equals 'yes'.Conditional 1 26 Person with cancer—fertility preservation procedure indicator, yes/no/unknown code N Mandatory 1 27 Person with cancer—fertility preservation procedure type, code N[N] Conditional obligation:
Complete if Person with cancer—fertility preservation procedure indicator, yes/no/unknown code N equals 'yes'.Conditional 9 28 Person with cancer—fertility preservation procedure type, text X[X(99)] Conditional obligation:
Complete if Person with cancer—fertility preservation procedure indicator, yes/no/unknown code N equals 'yes' and Person with cancer—fertility preservation procedure type, code N[N] equals 'other'.Conditional 9 29 Person with cancer—fertility preservation utilised indicator, yes/no/not applicable code N Conditional obligation:
Complete if Person with cancer—fertility preservation procedure indicator, yes/no/unknown code N equals 'yes'.Conditional 1 30 Person with prior cancer diagnosis—pregnancy outcome indicator, yes/no code N Mandatory 1 31 Person with cancer—performance status score at diagnosis, Eastern Cooperative Oncology Group code N Mandatory 1 32 Cancer staging—date of cancer staging, DDMMYYYY Optional 19 33 Person with cancer—distant metastatic site(s) at diagnosis, topography code (ICD-O-3) ANN.N Mandatory 19 34 Person with cancer—comorbidities, Colinet defined comorbidities code N[N] Conditional 9 35 Person with cancer—comorbidities, text X[X(99)] Conditional obligation:
Complete when Person with cancer—comorbidities, Colinet defined comorbidities code N[N] equals 'other'.Conditional 9 36 Person with cancer—research trial type, code N DSS specific information:
This item should be recorded for clinical trials relating to the initial course of treatment and clinical trials relating to the first recurrence of cancer where applicable.Mandatory 19 37 Person with cancer—clinical trial identifier, text X[X(399)] Conditional obligation:
Complete when Person with cancer—research trial type, code N equals 'clinical trial'.DSS specific information:
This item should be recorded for clinical trials relating to the initial course of treatment and clinical trials relating to the first recurrence of cancer where applicable.Conditional 9 38 Person with cancer—clinical trial phase, code N Conditional obligation:
Complete when Person with cancer—research trial type, code N equals 'clinical trial'.DSS specific information:
This item should be recorded for clinical trials relating to the initial course of treatment and clinical trials relating to the first recurrence of cancer where applicable.Conditional 9 39 Person with cancer—clinical trial funding basis, code N Conditional obligation:
Complete when Person with cancer—research trial type, code N equals 'clinical trial'.DSS specific information:
This item should be recorded for applicable trials relating to the initial course of treatment or the first recurrence of cancer.Conditional 9 40 Person with cancer—supportive care trial name, text X[X(39)] Conditional obligation:
Complete when Person with cancer—research trial type, code N equals 'supportive care trial'.DSS specific information:
This item should be recorded for applicable trials relating to the initial course of treatment or the first recurrence of cancer.Conditional 9 41 Person with cancer—research enrolment name, text X[X(39)] Conditional obligation:
Complete when Person with cancer—research trial type, code N equals 'other research'.DSS specific information:
This item should be recorded for research studies that relate to the initial course or first recurrence of cancer.Conditional 9 42 Patient—intention of treatment, code N Mandatory 1 43 Person with cancer—referral to palliative care services indicator, yes/no/unknown code N Mandatory 1 44 Person with cancer—date of referral to palliative care services, DDMMYYYY Conditional obligation:
Complete if Person with cancer—referral to palliative care services indicator, yes/no/unknown code N equals 'yes'.Conditional 1 45 Cancer treatment—external beam radiotherapy type, code N[N] Conditional obligation:
Collect this data element if Cancer treatment—radiotherapy treatment type, code N[N] indicates the use of external beam radiotherapy.Conditional 5 46 Cancer treatment—brachytherapy dose rate, code N Conditional obligation:
Complete this item if Cancer treatment—radiotherapy treatment type, code N[N] indicates the use of brachytherapy.DSS specific information:
This is to be collected for the intial course of treatment.Conditional 9 47 Cancer treatment—date of treatment outcome, DDMMYYYY DSS specific information:
Collect this item for outcome of treatment relating to the initial cancer primary and the outcome of treatment relating to the first recurrence of cancer.Mandatory 1 48 Patient—immediate/short term treatment complication indicator, yes/no/not applicable/unknown/not stated/inadequately described code N Conditional obligation:
Record this data element in relation to any immediate or short-term treatment complications that were experienced by the patient during medical treatment. This includes adverse events taking place within 30 days of treatment.Optional 1 49 Patient—treatment complication date, DDMMYYYY Conditional obligation:
Complete if Patient—treatment complication indicator, yes/no/not applicable/unknown/not stated/inadequately described code N equals 'yes'.DSS specific information:
Record this data element for any immediate or short-term treatment complications that were experienced by the patient during medical treatment. This includes any adverse events taking place within 30 days of treatment.Conditional 19 50 Cancer treatment—treatment complication outcome, code N Conditional obligation:
Complete if Patient—treatment complication indicator, yes/no/not applicable/unknown/not stated/inadequately described code N equals 'yes'.DSS specific information:
Record this data element for any immediate or short-term treatment complications that were experienced by the patient during medical treatment. This includes any adverse events taking place within 30 days of treatment.Conditional 19 51 Cancer treatment—treatment complication type, text X[X(149)] Conditional obligation:
Complete if Patient—treatment complication indicator, yes/no/not applicable/unknown/not stated/inadequately described code N equals 'yes'.Conditional 19 52 Patient—adverse event indicator, yes/no code N Mandatory 1 53 Patient—date of adverse event, DDMMYYYY Conditional obligation:
Collect this item if Patient—adverse event indicator, yes/no code N equals 'yes'.Conditional 19 54 Health service event—adverse event grade, code N Conditional obligation:
Complete if Patient—adverse event indicator, yes/no code N equals 'yes'.Conditional 19 55 Cancer treatment—cancer treatment type, code N[N] Conditional obligation:
Complete when there is a first recurrence of cancer.DSS specific information:
Complete this in relation to treatment for a first recurrence of cancer.Conditional 5 56 Cancer treatment—other cancer treatment, text X[X(149)] Conditional obligation:
Complete when there is a first recurrence of cancer.DSS specific information:
Complete this in relation to treatment for a first recurrence of cancer.Conditional 9 57 Person with cancer—late effect indicator, yes/no/unknown/not stated/inadequately described code N Mandatory 1 58 Person with cancer—date of late effect, DDMMYYYY Conditional obligation:
Complete when Person with cancer—late effects indicator, yes/no/unknown/not stated/inadequately described code N equals 'yes'.Conditional 19 59 Person with cancer—late effect type, text X[X(399)] Conditional obligation:
Complete when Person with cancer—late effects indicator, yes/no/unknown/not stated/inadequately described code N equals 'yes'.Conditional 19 60 Person—distress status in past week, distress thermometer code N[N] DSS specific information:
It is recommended that this item is collected within 2 weeks of diagnosis, 6-8 weeks post diagnosis, and 6 months post diagnosis. Any further screening should take place at the clinician’s discretion or the patient’s request. At a minimum, this should occur at remission, recurrence, or progression.
For more information regarding the use of the distress thermometer with Adolescent and Young Adults with cancer, please consult the Psychosocial Management of AYAs diagnosed with cancer: Guidance for health professionals (http://wiki.cancer.org.au/australia/ COSA:Psychosocial_management_of_AYA_cancer_patients/ Information_and_resources ).
Optional 99 999
Cluster Cancer (clinical) DSS Mandatory 1 -
Cluster Chemotherapy for cancer cluster Conditional obligation:
Conditional on patient receiving chemotherapy.Conditional 1 - Cancer treatment—chemotherapy completion date, DDMMYYYY Mandatory 1 - Cancer treatment—chemotherapy cycles administered, number of cycles N[NN] Mandatory 99 - Cancer treatment—chemotherapy start date, DDMMYYYY Mandatory 1 - Cancer treatment—systemic therapy agent or protocol, eviQ protocol identifier NNNNNN Conditional obligation:
Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website. Conditional 3 - Cancer treatment—systemic therapy agent or protocol, text X[X(149)] Mandatory 99 -
Cluster Hormone therapy for cancer cluster Conditional obligation:
Conditional on patient receiving hormone therapy.Conditional 1 - Cancer treatment—hormone therapy completion date, DDMMYYYY Mandatory 1 - Cancer treatment—hormone therapy start date, DDMMYYYY Mandatory 1 - Cancer treatment—systemic therapy agent or protocol, eviQ protocol identifier NNNNNN Conditional obligation:
Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website.Conditional 3 - Cancer treatment—systemic therapy agent or protocol, text X[X(149)] Mandatory 99 -
Cluster Immunotherapy for cancer cluster Conditional obligation:
Conditional on patient receiving immunotherapy.Conditional 1 - Cancer treatment—immunotherapy completion date, DDMMYYYY Mandatory 1 - Cancer treatment—immunotherapy start date, DDMMYYYY Mandatory 1 - Cancer treatment—systemic therapy agent or protocol, eviQ protocol identifier NNNNNN Conditional obligation:
Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website.Conditional 3 - Cancer treatment—systemic therapy agent or protocol, text X[X(149)] Conditional 99 -
Cluster Radiotherapy for cancer cluster Conditional obligation:
Conditional on the patient receiving radiotherapy.Conditional 1 - Cancer treatment—radiation dose administered, total Gray N[NN.NN] Mandatory 99 - Cancer treatment—radiotherapy completion date, DDMMYYYY Mandatory 99 - Cancer treatment—radiotherapy fractions administered, total fractions N[N] Mandatory 99 - Cancer treatment—radiotherapy start date, DDMMYYYY Mandatory 99 - Cancer treatment—radiotherapy target site, code N[N] Mandatory 99 - Cancer treatment—radiotherapy treatment type, code N[N] Mandatory 99 -
Cluster Surgery for cancer cluster Conditional obligation:
Conditional on the patient receiving cancer-directed surgery.Conditional 1 - Cancer treatment—surgery target site, topography code (ICD-O-3) ANN.N Mandatory 99 - Cancer treatment—surgical procedure date, DDMMYYYY Mandatory 99 - Cancer treatment—surgical procedure for cancer, procedure code (ACHI 8th edn) NNNNN-NN Mandatory 99 -
Cluster Systemic therapy procedure for cancer cluster Conditional obligation:
Conditional on the patient receiving a systemic therapy procedure.Conditional 1 - Cancer treatment—systemic therapy procedure date, DDMMYYYY Mandatory 99 - Cancer treatment—systemic therapy procedure, code N[N] Mandatory 99 - Cancer staging—cancer staging scheme source edition number, code N[N] Mandatory 1 - Cancer staging—cancer staging scheme source, code N[N] Mandatory 1 - Cancer staging—staging basis of cancer, code A Mandatory 1 - Cancer treatment—cancer treatment type, code N[N] Mandatory 1 - Cancer treatment—other cancer treatment, text X[X(149)] Conditional obligation:
Conditional on the patient having treatment that cannot be defined as surgery, radiotherapy or systemic therapy according to the definitions of those data items in this data set specification.Conditional 99 - Cancer treatment—outcome of treatment, code N.N Mandatory 1 - Date—accuracy indicator, code AAA Mandatory 1 - Establishment—organisation identifier (state/territory), NNNNN Mandatory 1 - Healthcare provider—organisation identifier, N(16) Mandatory 1 - Patient—cancer status, code N Mandatory 1 - Patient—date of last contact, DDMMYYYY Mandatory 1 - Patient—diagnosis date of cancer, DDMMYYYY Mandatory 1 - Patient—diagnosis date of first recurrence as distant metastasis, DDMMYYYY Conditional obligation:
Conditional on the patient being diagnosed with recurrence involving a distant metastasis.Conditional 1 - Patient—diagnosis date of first recurrence as locoregional cancer, DDMMYYYY Conditional obligation:
Conditional on the patient being diagnosed with recurrence of locoregional cancer.Conditional 1 - Person (address)—address line, text X[X(179)] Mandatory 1 - Person (name)—family name, text X[X(39)] Mandatory 1 - Person (name)—given name, text X[X(39)] Mandatory 1 - Person with cancer—distant metastasis status, M stage (UICC TNM Classification of Malignant Tumours, 7th ed) code X[XX] Mandatory 1 - Person with cancer—extent of primary cancer, stage grouping other, code X[XXXXX] Mandatory 1 - Person with cancer—extent of primary cancer, TNM stage (UICC TNM Classification of Malignant Tumours, 7th ed) code X[XX] Mandatory 1 - Person with cancer—histopathological grade, code N Mandatory 1 - Person with cancer—laterality of primary cancer, code A Mandatory 1 - Person with cancer—morphology of cancer, code (ICD-O-3) NNNN/N Mandatory 1 - Person with cancer—most valid basis of diagnosis of a cancer, code N Mandatory 1 - Person with cancer—most valid basis of diagnosis of the first recurrence, code N Conditional obligation:
Conditional on the return, reappearance or metastasis of cancer of the same histology after a disease-free intermission or remission.Conditional 1 - Person with cancer—number of positive regional lymph nodes, total N[N] Conditional obligation:
Conditional on the regional lymph nodes being excised and examined by a pathologist and demonstrated to be positive for malignancy.Conditional 1 - Person with cancer—number of regional lymph nodes examined, total N[N] Conditional obligation:
Conditional on the regional lymph nodes being excised and examined by a pathologist.
Conditional 1 - Person with cancer—primary site of cancer, topography code (ICD-O-3) ANN.N Mandatory 1 - Person with cancer—primary tumour status, T stage (UICC TNM Classification of Malignant Tumours, 7th ed) code X[XXX] Mandatory 1 - Person with cancer—region of first recurrence as distant metastasis, topography code (ICD-O-3) ANN.N Conditional obligation:
Conditional on the patient being diagnosed with recurrence of distant metastasis.Conditional 99 - Person with cancer—region of first recurrence as locoregional cancer, topography code (ICD-O-3) ANN.N Conditional obligation:
Conditional on the patient being diagnosed with recurrence of locoregional cancer.Conditional 99 - Person with cancer—regional lymph node metastasis status, N stage (UICC TNM Classification of Malignant Tumours, 7th ed) code X[XX] Mandatory 1 - Person with cancer—solid tumour size (at diagnosis), total millimetres NNN Conditional obligation:
Conditional on the histopathological examination of the tumour, and excludes Phyllodes tumours, sarcomas or lymphomas.Conditional 1 - Person—date of birth, DDMMYYYY Mandatory 1 - Person—date of death, DDMMYYYY Conditional obligation:
Recorded when the patient has died.DSS specific information:
This field must be greater than or equal to Date of diagnosis of primary cancer.Conditional 1 - Person—government funding identifier, Medicare card number N(11) Mandatory 1 - Person—Indigenous status, code N Mandatory 1 - Person—person identifier, XXXXXX[X(14)] Mandatory 1 - Person—sex, code N Mandatory 1 - Person—underlying cause of death, code (ICD-10 2nd edn) ANN-ANN Conditional obligation:
Recorded when the patient has died.
Conditional 1