102 Person—person identifier, XXXXXX[X(14)] DSS specific information:
This data element is to hold an identifier assigned at jurisdiction level for use in re-identification at source of de-identified personal records supplied to a national rheumatic heart disease data repository.Mandatory 1 103 Person—person identifier, rheumatic heart disease N(16) Conditional obligation:
Use of this data element is proposed as an interim arrangement pending implementation of a generic data element for national Individual Healthcare Identifiers for health information systems. Its use would also be subject to jurisdiction agreement.Conditional 1 105 Person—coded identifier rheumatic heart disease, code [X(7)] Conditional 1 112 Person (name)—family name, text X[X(39)] Mandatory 2 113 Person (name)—given name, text X[X(39)] Mandatory 1 114 Person (name)—alias, text X[X(39)] Optional 1 121 Person—date of birth, DDMMYYYY Mandatory 1 122 Date—accuracy indicator, code AAA DSS specific information:
This data element is to be used in association with the 'Person—date of birth, DDMMYYYY' and 'Person—date of death, DDMMYYYY' data elements.Mandatory 1 125 Person—sex, code N Mandatory 1 131
Cluster Person address cluster (rheumatic heart disease clinical) Mandatory 2 1 Person (address)—address status, code N Mandatory 1 11 Person (address)—house/property identifier, text X[X(11)] Optional 1 12 Person (address)—street name, text A[A(29)] Optional 1 13 Person (address)—street type, code A[AAA] Optional 1 15 Person (address)—suburb/town/locality name, text A[A(49)] Optional 1 20 Person (address)—Australian postcode, code (Postcode datafile) {NNNN} Mandatory 1 135 Person—telephone number, text X[X(39)] Mandatory 1 136 Person (telephone)—telephone number type, code A Conditional 1 141 Discrete Indigenous community—Indigenous community identifier, N(8)A Conditional 2 151 Person—Indigenous status, code N Mandatory 1 153 Person—non-Indigenous target group for rheumatic heart disease control programs, code N Conditional obligation:
This data element is recorded if the patient's Indigenous status is recorded as non-Indigenous via the 'Person—Indigenous status, code N' data element.Mandatory 1 155 Person—country of birth, code (SACC 2011) NNNN Mandatory 1 156 Person—Australian state/territory of birth, code N Mandatory 1 161 Person—informal carer existence indicator, code N Mandatory 1 163 Informal carer—relationship to care recipient, code N Conditional obligation:
This data element is to be recorded if the presence of informal carer is identified via the 'Person—informal carer existence indicator, code N' data element.Conditional 1 199 Person—consent to rheumatic heart disease register, code N Mandatory 1 201
Cluster Service provider organisation cluster Mandatory 2 1 Establishment—organisation identifier (state/territory), NNNNN Mandatory 1 5 Establishment—organisation identifier (Australian), NNX[X]NNNNN Conditional obligation:
for national data setConditional 1 11 Service provider organisation (name)—organisation name, text X[X(199)] Mandatory 1 21 Service provider organisation (address)—Australian postcode, code (Postcode datafile) {NNNN} Mandatory 1 301
Cluster Acute rheumatic fever diagnosis and notification KPI cluster Mandatory 6 307 Patient—acute rheumatic fever confirmation status, code N Mandatory 1 316 Patient—notification date, DDMMYYYY DSS specific information:
Notification date is the equivalent of diagnosis date for acute rheumatic fever
Mandatory 1 324 Patient—rheumatic heart disease detection method, code N Mandatory 1 349 Patient—acute rheumatic fever recurrence status, code N Mandatory 1 351
Cluster Rheumatic heart disease diagnosis cluster Conditional obligation:
If diagnosed with RHDMandatory 1 1 Patient—rheumatic heart disease diagnosis date, DDMMYYYY Mandatory 1 13 Person—presence of mitral valve regurgitation, code N Optional 1 14 Person—severity of mitral valve regurgitation, code N Conditional obligation:
Recorded if mitral valve regurgitation is present.Conditional 1 16 Person—presence of mitral valve stenosis, code N Optional 1 17 Person—severity of mitral valve stenosis, code N Conditional obligation:
Recorded if mitral valve stenosis is present.Conditional 1 18 Person—presence of aortic valve regurgitation, code N Optional 1 19 Person—severity of aortic valve regurgitation, code N Conditional obligation:
Recorded if aortic valve regurgitation is present.Conditional 1 21 Person—presence of aortic valve stenosis, code N Optional 1 22 Person—severity of aortic valve stenosis, code N Conditional obligation:
Recorded if aortic valve stenosis is present.Conditional 1 23 Person—presence of tricuspid valve lesion, code N Optional 1 25 Person—presence of pulmonary valve lesion, code N Optional 1 361
Cluster Acute rheumatic fever/rheumatic heart disease status cluster Mandatory 1 1 Patient—rheumatic heart disease status assessment date, DDMMYYYY Mandatory 1 2 Patient—rheumatic heart disease status, code N Mandatory 1 5 Patient—antibiotics requirement for prevention of acute rheumatic fever, yes/no code N Mandatory 1 7
Cluster Current pregnancy cluster Conditional obligation:
Data elements in this cluster are recorded if a woman is undergoing a pregnancy.Conditional 1 1 Female—pregnancy indicator (current), code N Mandatory 1 2 Female—expected confinement date, DDMMYYYY Mandatory 1 9 Person—international normalised ratio target range, code N Conditional obligation:
Recorded if anticoagulant treatment has been prescribed.Conditional 1 501
Cluster Physician review cluster Conditional obligation:
alternately, reviews may be conducted from time to time by a Paediatrician or CardiologistOptional 99 1 Person—review due date (physician), DDMMYYYY Optional 1 5 Person—review date (physician), DDMMYYYY Conditional obligation:
Recorded if review by a physician has been conducted.Conditional 1 502
Cluster Paediatrician review cluster Conditional obligation:
alternately, reviews may be conducted from time to time by a Physician or CardiologistConditional 99 1 Person—review due date (paediatrician), DDMMYYYY Optional 1 5 Person—review date (paediatrician), DDMMYYYY Conditional obligation:
Recorded if a review by a paediatrician has been conducted.Conditional 1 503
Cluster Cardiologist review cluster Conditional obligation:
alternately, reviews may be conducted from time to time by a Physician or Paediatrician Optional 99 1 Person—review due date (cardiologist), DDMMYYYY Optional 1 5 Person—review date (cardiologist), DDMMYYYY Conditional obligation:
Recorded if a review by a cardiologist has been conducted.Conditional 1 511
Cluster Local medical officer/general practitioner review cluster Conditional 1 1 Person—review due date (local medical officer/general practitioner), DDMMYYYY Optional 1 5 Person—review date (local medical officer/general practitioner), DDMMYYYY Conditional obligation:
Recorded if a review by a local medical officer or general practitioner has been conducted.Conditional 1 521
Cluster Echocardiographer review cluster Mandatory 99 1 Person—review due date (echocardiographer), DDMMYYYY Optional 1 5 Person—review date (echocardiographer), DDMMYYYY Conditional obligation:
Recorded if an echocardiogram has been conducted by an echocardiographer.Conditional 1 531
Cluster Dentist review cluster Mandatory 99 1 Person—review due date (dentist), DDMMYYYY Optional 1 5 Person—review date (dentist), DDMMYYYY Conditional obligation:
Recorded if review by a dentist has been conducted.Conditional 1 11 Person—dental fitness indicator, code N Conditional obligation:
Recorded if applicable following dental review.Conditional 1 601
Cluster Antibiotic regimen (acute rheumatic fever) cluster Conditional obligation:
Data elements in this cluster are reportable if antibiotic prophylaxis is prescribed (most cases).Mandatory 99 1 Patient—prophylaxis commencement date, DDMMYYYY Optional 1 2 Person—acute rheumatic fever prophylaxis expected cessation date, DDMMYYYY Conditional obligation:
Recorded when a date to cease regular treatment can be estimated for the person according to evidence-based best practice.Conditional 1 3 Patient—prophylaxis cessation date, DDMMYYYY Conditional obligation:
Recorded when a person identified as requiring secondary prophylaxis treatment to prevent recurrent ARF, is ceased treatment according to evidence-based best practice.Conditional 1 4 Patient—antibiotic agent prescribed, acute rheumatic fever code N Conditional obligation:
Recorded when a person has been commenced on secondary prophylaxis treatment to prevent recurrent ARF.Conditional 1 5 Patient—prescribed frequency of intramuscular antibiotic treatment, code N Conditional obligation:
Recorded when a person is indicated to receive benzathine penicillin G to prevent recurrent ARF. Conditional 1 605
Cluster Antibiotic administration event cluster Conditional obligation:
Data elements in this cluster are reportable if an prophylactic antibiotic regimen is prescribed.Conditional 99 1 Patient—antibiotic administration date, DDMMYYYY Optional 1 11 Establishment—organisation identifier (state/territory), NNNNN Conditional obligation:
Recorded if antibiotic administration date (acute rheumatic fever) is true.Conditional 1 15 Service provider organisation (name)—organisation name, text X[X(199)] Optional 1 21 Service provider organisation (address)—Australian postcode, code (Postcode datafile) {NNNN} Optional 1 651 Person—influenza vaccine administration date, DDMMYYYY Conditional obligation:
This data element is to be recorded if there are no known contraindications that prevent administration of the influenza vaccine to individuals indicated for vaccination, as described in the Australian Immunisation Handbook 9th Edition 2008.
Conditional 99 652 Person—pneumococcal vaccine administration date, DDMMYYYY Conditional obligation:
This data element is to be recorded if there are no known contraindications that prevent administration of the pneumococcal vaccine to individuals indicated for vaccination, as described in the Australian Immunisation Handbook 9th Edition 2008.Conditional 7 701
Cluster Rheumatic heart disease surgery cluster Conditional obligation:
Data elements in this cluster are reportable if the person has undergone surgery for cardiac valve repair or replacement.Conditional 99 1 Rheumatic heart disease surgery—date surgical procedure recommended, DDMMYYYY Optional 1 3 Rheumatic heart disease surgery—surgical procedure date, DDMMYYYY Optional 1 5 Service provider organisation (name)—organisation name, text X[X(199)] Conditional obligation:
Recorded when surgery for rheumatic heart disease has been conducted.Conditional 1 7
Cluster Valve procedure cluster Conditional obligation:
Recorded when surgery for rheumatic heart disease has been conducted.Conditional 4 1 Rheumatic heart disease surgery—heart valve identifier, code N Mandatory 1 2 Rheumatic heart disease surgery—heart valve procedure type, code N Mandatory 1 3 RHD surgery—heart valve prosthesis identifier, code N Conditional obligation:
If procedure type is replacement.Conditional 1 9 Rheumatic heart disease surgery—post-surgery survival indicator, yes/no/not stated/inadequately described code N Conditional obligation:
Recorded when surgery for rheumatic heart disease has been conducted.Conditional 1 711 Anticoagulant treatment—commencement date, DDMMYYYY Conditional obligation:
Reported if a person has a specific condition associated with RHD that requires blood thinning treatment.Conditional 99 721 Anticoagulant treatment—completion date, DDMMYYYY Mandatory 3 725
Cluster International normalised ratio measurement cluster Conditional obligation:
<<< What determines the conditionality of this data element cluster? MMU 9/12/11 >>>Conditional 4 1 Anticoagulant treatment—international normalised ratio measurement date, DDMMYYYY Optional 1 2 Anticoagulant treatment—international normalised ratio level (measured), N[N.N] Conditional obligation:
Recorded when prescribed anticoagulant treatment is measured.Conditional 1 3 Anticoagulant treatment—dose prescribed, total milligrams per 24 hour N[NN].N Conditional obligation:
Recorded when anticoagulant treatment is indicated.Conditional 1 901 Person—date of death, DDMMYYYY Conditional obligation:
Recorded if the patient has died.Conditional 1 902 Person—underlying cause of death, code (ICD-10 2nd edn) ANN-ANN Conditional obligation:
Recorded if the patient has died.Conditional 1