- | Episode of community-based palliative care cessation reason | Number
[1]
| 1 | Patient death | 8 | Discharge/case closure | 9 | Not stated/inadequately described |
| Conditional obligation: Recorded if an episode of palliative care (community) ends. DSS specific information: Definitions of 'episode of care' may vary within the palliative care context. The definition used in this dataset states an episode of care may span more than one treatment setting. The term 'period of community-based palliative care' may be used in collection guidelines for this data set however, ‘episode of care’ is the term used for these metadata items in this data set. A different methodology applies to the definition of episode of care used by the Palliative Care Outcomes Collaboration (PCOC) as one which commences on the day of first face-to-face contact after being accepted for care and finishes whenever the setting of care changes. |
- | Episode of community-based palliative care end date | Date/Time
[8]
| DDMMYYYY The day of a particular month and year. | Conditional obligation: Recorded if an episode of pallitative care (community) ends.DSS specific information: Definitions of 'episode of care' may vary within the palliative care context. The definition used in this dataset states an episode of care may span more than one treatment setting. The term 'period of community-based palliative care' may be used in collection guidelines for this data set however, ‘episode of care’ is the term used for these metadata items in this data set. A different methodology applies to the definition of episode of care used by the Palliative Care Outcomes Collaboration (PCOC) as one which commences on the day of first face-to-face contact after being accepted for care and finishes whenever the setting of care changes. |
- | Episode of community-based palliative care start date | Date/Time
[8]
| DDMMYYYY The day of a particular month and year. | DSS specific information: Definitions of 'episode of care' may vary within the palliative care context. The definition used in this dataset states an episode of care may span more than one treatment setting. The term 'period of community-based palliative care' may be used in collection guidelines for this data set however, ‘episode of care’ is the term used for these metadata items in this data set. A different methodology applies to the definition of episode of care used by the Palliative Care Outcomes Collaboration (PCOC) as one which commences on the day of first face-to-face contact after being accepted for care and finishes whenever the setting of care changes. |
- | Phase of palliative care | Number
[1]
| 1 | Stable | 2 | Unstable | 3 | Deteriorating | 4 | Terminal |
| DSS specific information: Definitions of 'episode of care' may vary within the palliative care context. The definition used in this dataset states an episode of care may span more than one treatment setting. The term 'period of community-based palliative care' may be used in collection guidelines for this data set however, ‘episode of care’ is the term used for these metadata items in this data set. A different methodology applies to the definition of episode of care used by the Palliative Care Outcomes Collaboration (PCOC) as one which commences on the day of first face-to-face contact after being accepted for care and finishes whenever the setting of care changes. |
- | Principal palliative care diagnosis | Number
[1]
| 1 | Malignant neoplasm | 8 | Other diagnosis | 9 | Not stated/inadequately described |
| DSS specific information: Definitions of 'episode of care' may vary within the palliative care context. The definition used in this dataset states an episode of care may span more than one treatment setting. The term 'period of community-based palliative care' may be used in collection guidelines for this data set however, ‘episode of care’ is the term used for these metadata items in this data set. A different methodology applies to the definition of episode of care used by the Palliative Care Outcomes Collaboration (PCOC) as one which commences on the day of first face-to-face contact after being accepted for care and finishes whenever the setting of care changes. |
- | Establishment number | Number
[5]
| NNNNN A combination of numeric characters that identify an entity. | |
- | Informal carer co-residency | Number
[1]
| 1 | Co-resident carer | 2 | Non-resident carer | 9 | Not stated/inadequately described |
| Conditional obligation: Recorded if the patient (person with a life-limiting illness) has a carer (see Person—carer existence indicator, code N). |
- | Relationship of carer to care recipient | Number
[1]
| 1 | Spouse/ partner | 2 | Parent | 3 | Child | 4 | Child-in-law | 5 | Other relative | 6 | Friend/ neighbour | 9 | Not stated/inadequately described |
| Conditional obligation: Recorded if the patient (person with a life-limiting illness) has a carer (see Person—carer existence indicator, code N). |
- | Postcode—Australian (person) | Number
[4]
| {NNNN} The Postcode datafile code set representing Australian postcodes as defined by Australia Post. | DSS specific information: This DSS proposes use of postcode to collect information on the geographic location of the patient, recognising the voluntary nature of this dataset. It is acknowledged that collection of Statistical Local Area (SLA), e.g. Person-area of usual residence, geographical location code (ASGC 2007) NNNNN, would provide more accurate information on geographical location. It is suggested that the inclusion of this more accurate information is considered if this datasset is considered as a national minimum dataset. At least some palliative care agencies are likely to require some level of support to report SLAs. |
- | Australian state/territory identifier (person) | Number
[1]
| 1 | New South Wales | 2 | Victoria | 3 | Queensland | 4 | South Australia | 5 | Western Australia | 6 | Tasmania | 7 | Northern Territory | 8 | Australian Capital Territory | 9 | Other territories (Cocos (Keeling) Islands, Christmas Island and Jervis Bay Territory) |
| |
- | Country of birth | Number
[4]
| NNNN The Standard Australian Classification of Countries (SACC 2011) code set representing a country. | |
- | Date of birth | Date/Time
[8]
| DDMMYYYY The day of a particular month and year. | |
- | Date of death | Date/Time
[8]
| DDMMYYYY The day of a particular month and year. | |
- | Indigenous status | Number
[1]
| 1 | Aboriginal but not Torres Strait Islander origin | 2 | Torres Strait Islander but not Aboriginal origin | 3 | Both Aboriginal and Torres Strait Islander origin | 4 | Neither Aboriginal nor Torres Strait Islander origin | 9 | Not stated/inadequately described |
| |
- | Informal carer existence indicator | Number
[1]
| 1 | Yes | 2 | No | 9 | Not stated/inadequately described |
| DSS specific information: If the patient has a carer, Informal carer—co-residency status, code Nand Informal carer—relationship to care recipient, code N must be recorded.
|
- | Living arrangement | Number
[1]
| 1 | Lives alone | 2 | Lives with others | 9 | Not stated/inadequately described |
| |
- | Main language other than English spoken at home | Number
[4]
| NN{NN} The Australian Standard Classification of Languages (ASCL 2011) code set representing languages. | |
- | Person identifier | String
[20]
| XXXXXX[X(14)] A logical combination of valid alphanumeric characters that identify an entity. | |
- | Place of death | Number
[1]
| 1 | Private residence | 2 | Residential - aged care setting | 3 | Residential - other setting | 4 | Non-residential setting | 5 | Inpatient - designated palliative care unit | 6 | Inpatient - other than designated palliative care unit | 8 | Other location |
| |
- | Sex | Number
[1]
| 1 | Male | 2 | Female | 3 | Intersex or indeterminate | 9 | Not stated/inadequately described |
| |
- | Referral date | Date/Time
[8]
| DDMMYYYY The day of a particular month and year. | DSS specific information: For the purposes of this DSS, self-referrals and referrals from family members and friends are considered to be referrals. |
- | Referral source | Number
[1]
| 1 | Self, carer(s), family or friends | 2 | Medical practitioner - general practitioner | 3 | Medical practitioner - specialist | 4 | Community-based palliative care agency | 5 | Community-based service - other | 6 | Inpatient facility | 7 | Residential aged care service | 8 | Other source | 9 | Not stated/inadequately described |
| |
- | Australian state/territory identifier (service provider organisation) | Number
[1]
| 1 | New South Wales | 2 | Victoria | 3 | Queensland | 4 | South Australia | 5 | Western Australia | 6 | Tasmania | 7 | Northern Territory | 8 | Australian Capital Territory | 9 | Other territories (Cocos (Keeling) Islands, Christmas Island and Jervis Bay Territory) |
| |